I’m ashamed.
It all began with me feeling sorry for myself. I was
consumed with myself and the loss of someone I had believed and hoped was “for
real;” someone who would be in my life forever. Then, I started thinking of all
the ways in which I had not been a great friend to the wonderful people who
stick with me no matter what. I started thinking of how I could’ve been a
better wife . . . a better girlfriend . . . And then I started thinking about how I could’ve
been a better daughter, sister, niece, cousin to my family. It was all about
ME. Poor, poor JillyG.
A few weeks ago, life slapped me hard – very hard. But it didn’t just slap me. It slapped the people who in no way, shape,
or form deserve to be slapped . . . my parents.
I am extremely, extremely fortunate to have grown up in a
happy, well-adjusted, harmonious family. Sure, my early years were tumultuous,
due to abandonment, selfishness, and lies on the part of one individual. Then,
the universe decided to bless me, my mom, and my younger sister with a savior –
my dad.
My dad – oh, I can’t do him justice with my blogger words,
but I can say that he is one of the most selfless, caring, loving, inspiring,
motivating, smart, funny, amazing individual to ever grace this earth. His love
for my mom transferred to her two toddler girls and so began our family (and
eventually a later addition, my brother). My dad gave me a life that every girl
dreams of. He and my mom never fought (well, at least not in front of us kids).
I experienced true love, respect, and tolerance through my parents. We laughed
so, so much. We sang. We camped. We spent much time in Hersey, PA. We learned
about values and responsibility. We learned that disappointing our parents was much
worse than being grounded or slapped. We were held accountable for our actions.
We lived. We loved.
Then, Parkinson’s happened. Fuck Parkinson’s. It happened to
the one person who LEAST deserves it – my dad. He lived with it fine for a long
time. We even joked about it. Then….more abandonment. More lies. More
disappointment. And, the disease accelerated. And we were not; are not
prepared.
I looked at my dad a few weeks ago, and while I noticed a
bit of a weight gain (especially when pushing him in his chair), he seemed to
be enjoying himself and my lousy singing during a night out of karaoke. Then,
the next day, everything changed. I looked at my dad and . . . Fuck Parkinson’s.
My dad is still my dad, but he is not – if that makes sense.
I know he loves me. I know he loves my mom. And I know my mom loves him. But,
but – my heart is breaking. His quality of life has diminished greatly. For
someone who has lived his life with so much love and laughter, I am so, so, so
angry that this is how it is going to end. HE DOES NOT DESERVE THIS, AND NEITHER
DOES MY MOTHER! Fuck Parkinson’s!
I am dedicating the rest of my life to helping in any way
that I can to find and fund a cure for this disease . . . to
help not only the victims, but also their caregivers . . . beginning with a 5K charity run on
August 25th in Southern California. More information will be
available soon, and it would be awesome if you want to help in any way.
I was ashamed. Now, thanks (again) to my amazing parents, I
have motivation and encouragement to stop feeling sorry for myself and to make
a difference – something they have always and will always remind me to do. FUCK
PARKINSON’S!!!